I went to work today while Steph stayed at the hospital with Quinn. About noon time I got a call from Steph letting me know that he was having some low oxygen level spells and increased heart rate every time they reduced his morphine. I don't think he's quite ready to feel the pain of the surgeries, especially with his tetralogy of fallot condition (his heart). The decision was made by the doctors to move him to Boston where they have a unit that specialises in heart conditions.
So I let the guys at work know that I had to leave immediately. Gotta go help my son with his morphine addiction, and came to collect my wife for a trip up to Boston. Work has been good about letting my son dictate my schedule. We have a bag of dirty laundry and the clothes on our backs for tonight so this should be interesting. So many friends and family have been offering all manner of assistance which is great. Steph is taking a few minutes to finish getting ready and then we'll be off. Updating this is easier than trying to call everyone. So I logged onto a computer in the lobby to update you all while I wait for Steph. And then we'll be off. Thank you all for your support.
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3 comments:
Steph and Dan,
You three are in our thoughts and prayers as you make your trip to Boston. I'm sure you keep hearing this, but if there's anything we can do don't hesitate to call or email.
with love - Suzanne and Clay
Hi Steph and Dan
I heard about Quinn from Jess. He looks great and he is obviously very strong. You have made a great move, the doctors here at Children's are the best of the best. Gib, Ellie andI are actually on your floor, we are in 8 West, so walk out of the ICU and turn left before the elevators and we are all the way down right infront of the nurses station. Please stop by any time.
We would love to help you three in any way that we can, including a guest bed that was shipped here straight from CT so it is kinda like home. We also have been here a while and know the lay of the land and can help get you all settled as soon as possible.
Congrats on the new baby boy! He looks so big. Isn't it amazing how much personality they have even when they are so young?
Abby Brogan
Dan & Steph: I can't wait to hold him! Know that my heart and prayers are with you all. Dan, you know Nohno would've been here in a heartbeat. Who knows..she's probably right there with Quinn! Wish I could be there, too, but as it is, just keep praying and believe that Quinn will be home soon and be as healthy as ever.
May God hold you in HIS loving care..
Love, Aunt Nik
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