I still catch myself looking down at him from time to time wondering how I got so lucky. I love him so much and I'm so grateful to have him in my life. He's such a wonderful happy little boy. He loves to smile at strangers (when he doesn't have gas) and he really loves looking at people wearing glasses. He's so observant.
Needless to say these last three weeks have been bliss. Of course I'm still so anxious about going back to a hospital. Every time he coughs or sneezes I wonder if he's getting sick. However, I have to say I am soo lucky. Because of how Quinn started off life we have a lot of help. We have a nurse that comes to the house twice a week. If I ever have any medical questions I can call them anytime night or day, just like the pediatrician. The nice thing about them is, they will come to me, even on the weekend. All of you mom's can appreciate how incredible a thing that is. It brings me such peace of mind to know they are there.
We also have early intervention coming to the house to catch Quinn up on motor skills. They give me homework to do with him. Right now we are working on neck control and him reaching for things to his mid line instead of just to his sides. They are also wonderful enough to come to the home. I have to admit, sometimes I use them as my adult conversation for the day.
And finally, I have actual news. Some time in the second or third full week of March Quinn is going back to Boston. We are going for the first of the routine maintenance procedures for his heart. It sounds very simple. They don't even cut him back open. They will put a catheter up through a vein in his leg to the heart. Once in the pulmonary artery of the heart they will inflate a balloon and run it up and down to widen the artery. This will relieve some of the pressure in his heart so the heart doesn't have to work so hard and help improve his blood circulation. We will definitely keep you posted on when this will happen and let you know how it goes. Thank you again for following along with our story and for all of your support. Talk to you all soon.