Sunday, June 29, 2008

Quinns latest medical stuff

To set the table for this update, it should be understood that Quinn has days when the surgical repair site in his throat will swell up and prevent him from eating. When this happens, he will take a bite of food, and his swallowing ability won't push the food all the way down to his stomach. He immediately starts wheezing, and in the following moments he will throw up what ever he just ate. The hard part for the parents is that he will still want food no matter how much he pukes, because he's still hungry. And we have to tell him no even though we know he must be starving. On a bad day, he will throw up all day and not hold down so much as a single spoonful of food. On these types of days the routine is that he will go to sleep hungry and the following morning he eats like a little horse.
Well last week, after two days, he was still tossing after every bite and every sip of water, so we took him to the emergency room. He was still playful and interactive, but he had lost over a pound and was looking thin. We were back in Providence at Hasbro children's hospital. Very familiar place to Quinn. Same smell, same IV team dilemmas, and same doctor too. Quinn's last year pic next to this one from two days ago:


Last year he new no fear. This year, he knows all the precursors to pain. He's still a hard stick with his well hidden veins. So three attempts for the first IV. Quinn underwent a procedure to dilate his throat using an inflatable device that inserts into the site where the stricture is and stretches it out. He is put all the way under for this procedure, and is probably not feeling like a million bucks when he awakes. But given a few minutes he's good for a smile. Awesome.


If you've ever wondered how some people find joy in life at every opportunity, watch a small child that isn't tired. They'll show you all there is to know. Quinn was admitted on a Wednesday night and stayed through to Friday evening. I was still working and Steph stayed at the hospital with him round the clock. So we were some tired parents.

Visits from both Quinn's grandmothers helped.

video
Keeping Quinn entertained while he's strapped to an IV device was another challenge. Kids hate to sit still. The hospital had these little cars to get the kids out of the room for a break.

Anytime Quinn wanted to run around, one of us had to chase behind him carrying his IV fluid and pump. Quinn never had a thought that of he ran too far and his Needle came out, he would need to be stuck again. Although, once they used his foot for an IV site, he could only sit.

A question for anyone reading this. Would you prefer to be the one holding your kid down during some terrible experience or would you rather some medical staff member handle the matter? After his throat was dilated the doctor wanted to see Quinn's digestive system function under x-ray equipment. He must be held down, and force fed this radioactive fluid so that the image of his digestive system can be displayed. This was the strongest I've felt Quinn fight me.



The whole time I'm wondering how he'll ever forgive me. He was pinned down by dad, crying his eyes out, while mom was forcing him to choke down a whole bottle of this white plastery looking crap. He managed to get one arm free during the ordeal and was able to give dad a few slaps to the face. Not much you can say to comfort him.

When the test was done, I took a good swig of the Barium fluid because I was dying to know what kind of misery we had induced on Quinn. The doctors description of the taste was that it had a new bubblegum flavor...I would say it was a mix of sugar water and chalk, and a maybe little mustard powder. Nasty.
The fluid was observed through his esophagus and his duodenum, both surgical repair sites. The flow path checked out with no signs of stricture. Within the day he was released to go back home where he has been eating and drinking like a hungry growing little boy.
Sorry the update took so long pop. He's doing great now. Hopefully I can get my small family into a house of our own soon. I'm trying to strike bargains on these outrageously priced homes. Wish me luck.
In other news my sister in Washington state has begun having contractions to give Quinn a third female cousin.....

7 comments:

Pop said...

You guys are really something else. Great job on the update Dan! Quinn will learn much about the both of you...and the inner strength he has when he is old enough to read and understand this blog. My heart goes out to the three of you. It is hard to even SEE pictures of Quinn going through this. I can only imagine what you and Steph go through emotionally.
By the way, I would elect to hold my son down during the procedure.

Love,
Pop and Kim

Tracey said...

Wow, guys,I had no idea. :-( I still check the blog every day during my internet rounds before I settle down to work. As I scrolled through to the bottom of this post and saw the last one about ice cream, I smiled and thought--ah, ice cream!! Easy to swallow, calories and protein, super yummy--that should make quinn smile and grow a little! So it seemed like a happy ending (friendly's?) to a tough story.

I have no idea what I would do if I had to hold my child down. At least it sounds like you were home in time for Steph's birthday--a good present.
Thinking of you guys, and I'm glad you're all home from the hospital!!
Love,
Tracey

The Keenans said...

Poor baby : ( I still check in on Quinn and have since the "Go Quinn Go" days. You guys are incredible parents! Good luck to little Quinn and you both.
Becky in San Diego

Anonymous said...

HI LITTLE PRINCE . SO YOU GOT OVER THAT LITTLE STONE . IT WAS NOT OR WAS PLANNED TO MAKE YOU GROW STRONGER . YOUR LITLLE FRENCH FRIENDS HAVE BEEN KEEPING UP ON YOUR PROGRESS FROM TIME TO TIME . AND KNOW THAT THE MIGHTY JUST GROWS STRONGER . KATHLEEN FROM 3MONTHS TO 4YRS GAVE HER PARENTS A FEW SCARY MOMENT S BUT I LOOK AT HER NOW A STATE CHAMPION IN CLIMBING FOR THE PAST 2 YRS . AND SHE CLIMBS OVER ALL THE OBSTACLES BECAUSE OF PRAYERS AND FRIEND S WHO SUPPORTED US IN TIMES OF NEED .ALL IT TAKES IS GOOD PARENTS . FAMILY AND FRIENDS TO PRAY FOR A COMPLETE HEALING . AND LUCKY YOU YOU HAVE ALL THAT AND MORE.. LOT S OF LOVE TO ALL FROM FRANCE . JOMI ET KATHLEEN

A&J Bariso said...

WOW!! all we can say is that you 2 are amazing parents. We are are soooo happy to see that Quinn is doing better and on his way to happy and endless eating.
Just now that your comfort will get Quinn past all this.

We are also excited to learn Quinn is learning another language.
Alex and I have a beat to see what Izzy's first word will be and in what language.

Hope you are getting some much needed rest
Love
Alex, Jess and Izzy

Tammara, Jess and Cory said...

Go Quinn Go I am so sorry you had to go through this Quinn. You will look back on this and see all the strength and love Mom and Dad have for you. I am glad you are back home doing well like a growing little boy should. Your smile always brings a smile to my face.
I would elect to hold my own child down. It is much less scarier with a familiar face doing it.

Pop said...

I agree with Tammara, jess and Cory on the "familiar face" thing. Love you guys much, much. Hi to our friends from France!

Pop and Kim