Sunday, January 21, 2007

New challenges

So I didn't get my wish for Quinn to spend the next few months relaxing at home. What he got over the weekend was indeed the opposite.


His temperature reached over 103 on the morning after his first night back in the hospital. The first spinal cord culture came back with traces of bacteria, indicating numerous possible infections including meningitis. Antibiotics were given immediately and more tests were performed. It is suspected that his first spinal cord culture may have been contaminated with blood or stool from Quinn's forceful pooping during the needle insertions ( -10 on a scale of fun things to watch). Over the course of the weekend, six spinal tap attempts to yield two usable samples. I've never had a spinal tap myself, but when they don't get the needle into the spine, and instead hit a nerve, it looks and sounds unbearably painful to me.


I lost count of how many IV attempts occurred each day to yield only one usable line in his ankle.


Two swabs up the nose into his sinuses, and a catheter for a urine sample.


By Sunday night we are unable to lay him on his back or burp him without cries from the needle punctures in his spine. The doctors have had conflicting and inconclusive results from these tests, and have been unable to diagnose what the infection is, or if he even has one. Nor have they been able to rule out meningitis. He is generating a lot of discussion among the different specialists at the hospital. Currently, with no diagnosis, the discussions are for Quinn to undergo a hospitalized two week antibiotic treatment to err on the side of caution.


His temperature has gone down, but is fluctuating between 98 and 101 every few hours. He is looking a little paler than normal and sleeps more often with longer durations, probably from exhaustion. He has been crying more and is tougher to calm. His desire to breast feed has gone down significantly, so we bottle feed him.
When awake he is still interactive and alert. Steph and I are very glad for that. He still has a high white bloodcell count, and it's troubling that no one knows what is wrong. If he undergoes a treatment that eliminates the symptoms, we may never know. With so many scary possibilities, we are back in the waiting game and hoping for a positive outcome.
I am postponing Quinn's welcome home celebration until I am certain he has no illness. I would like those of you who have been pulling and praying for him to have a chance to meet him, but there will be no undue risk involved. None of this has happened due to lack of prayer for the little guy, but as it turns out I was a little ahead of myself wanting to celebrate.

I saw tonight's game. I'm not horribly upset that the patriots won't be going to another Superbowl. It doesn't seem so important at the moment. They'll live to fight another day just like the mighty Quinn.

10 comments:

Our Family said...

Quinn's fan club in Arizona will be praying for him!

Anonymous said...

Dear Steph and Dan

I'll be praying for our little man. He is strong and determined and I'm comfident that he will be fine. I'll call soon.

Grandpa
Dan

Anonymous said...

One of the hardest things to do as a parent Is to sit back and watch your child suffer, I have to commend your strength! My heart is heavy for you guys and all your going through but With prayer and faith your little guy will make It through all this. You have shown all of us that the human spirit can handle anything when unconditional love Is involved. I am praying for Quinn and will continue to pray for him. I am also praying that the heavenly father continue to place his hand underneath both of you and continue to carry you through this.
If there is anything we can do please let Brett know! Let Quinn know that we are still praying for a complete healing. Peace and Blessings to you! Maria

Aunt Nik said...

Oh Quinn! If I were a fairy godmother, I'd wish you to be home with mom&dad! No more poking needles and nasty tubes!

I can only pray that God will continue to hold you in his healing hands!

God bless little Quinn, his mom&dad, and all those caring for the Mighty Quinn!

Anonymous said...

We haven't stopped praying for you. We pray for complete healing for Quinn, that the next time he goes back home he will be back for good, and that you both will be able to keep up your amazing strength. You will continue to be in our prayers daily.
rdg

Anonymous said...

My whole family and most of my co workers are praying for you Mighty Quinn. You have so much strength and ability to take this sickness and kick it in the butt!

Steph and Dan-Hang in there!

Love
Erin

Pop said...

Mighty Quinn,
You have had such a rough start. Almost no rest. One day this will all be behind us.....and not soon enough.
Oh Lord,
Keep Quinn in your care. Blessed are the children. Give Quinn strength and calm his soul. Watch over him and protect him. We humbly ask this of you. Heal Quinn as quickly as possible. Amen.
Quinn, Steph, Dan,
We love you and think of you so often throughout the day. Stay strong. We love you all so much.

Pop and Kim

Anonymous said...

Steph and Dan,

Thinking about you and Quinn everymorning of every day, support and prayers.
Love,
Joba

Anonymous said...

I'll keep the prayers going and his clothes are in the car ready to return to Westerly when he does.
Jane

Anonymous said...

KATHLEEN SAID TO ME TONIGHT.
DIDNT GOD SAY LET THE LITTLE CHILDREN COME TO ME, AND WHERE 2 OF YOU PRAY I AM WITH YOU . I BELIEVE NOW THAT THE KNOWLEGE IS IN THE SIMPLE MINDED/ NOT IN A NEGATIVE WAY ; BUT IN IN SIMPLE WAY . A WAY THAT MIGHTY QUINN " LE PETIT PRINCE" HAS SHOWN SO MANY THE POWER AND THE MIRICALE OF LIFE ..QUINN KATHLEEN IS PRAYING HER HEART OUT FOR YOU . WE LOVE YOU AND HAVEN T MET YOU GOD BLESS YOU AND GIVE YOU MANY SWEET DREAMS LOVE FROM YOUR LITTLE FRIEND IN FRANCE KATHLEEN