Dan, Quinn, and I would like to wish everyone happy holidays and let everyone know how much their continued support means to us. We feel your love and support even from a distance. We love you all and thank you so much.
Dan and I got a wonderful Christmas gift (well a couple of wonderful Christmas gifts). Quinn came off of his IV nutrients today. Which is really exciting because it means 1) he's been tolerating his feeds very well (which I'll talk more about in a minute) and 2) he no longer has anything running through an IV constantly, which means we can disconnect (him except for his food) and take him out of our room. We are starting to be able to do things with Quinn that almost feel normal. It was wonderful, our first family walk!!!!!
(I can also hold him a lot more easily now that we are down to 5 lines running out of him :) )
OK, so back to the feeding issue. Many people have suggested that my diet may have something to do with Quinn's gas. I too asked this question. So, what we have done is switched him to formula for a couple of days 1) to see if it really is my milk he is reacting to and 2) if it is my milk, to give him a little break and to allow me to clear some foods from my system. He's been on formula for almost two days and Dan says that Quinn still cries as much and as forcefully as he did before. I'm still going to change my diet and see if that seems to make a difference when we start using my milk again in a day or two. We will let you know how this goes.
The next couple pictures are of all of Quinn's stuffed animals. It's amazing, Dan and I came here with nothing for Quinn and now look at his little audience of stuffed animals. Some of them were given to us by family, but most of them were given to us by perfect strangers. People do the most amazing things around the holidays. It's too bad this doesn't usually happen all year long, but it's wonderful that it happens at all.
(There's a little blue dog hiding under the blanket with Quinn as well)
Santa came to visit Quinn this morning, unfortunately I had just stepped out of our room and Dan was asleep so he took a Polaroid with Quinn and left it for us. Hopefully I can scan it someday and put it on the site. Several families who have had children with heart problems have given out gifts here and other families who have already left drop off food in lounge. It's such a tribute to human kindness still existing.
Lastly, I think we are finally getting the hang of soothing Quinn. This is one of the ways daddy does it. I just thought you would all enjoy this. OK, take care everyone.