I miss seeing the little mans personality and interactiveness, but watching him go through so much exhausting pain is something I don't miss at all. We all know a little something about our own tolerances for physical pain. But watching my infant son have to deal with it this frequently is something I hated every second of. Nonetheless I am very glad to be with him, even if I do feel useless. He is on a pace maker right now because the upper and lower chambers of his heart are not in perfect sync yet. He should come off of it after about a week.
In addition to keeping everyone up to date, I also put pictures on here for Quinn to look back on someday. Steph started this website to be the beginning of his baby scrapbook. He would have no recollection of the time when he was hooked up to all these machines. And maybe one day, when he's complaining about cleaning his room, I can show him a time when life was a bit tougher for him. Many have said these pictures put things into perspective, and I think they'll continue to do so in the future. Even for the little guy himself.
You survived this Quinn, before I ever taught you a thing about being tough. Whatever pressures life brings, don't doubt yourself and what you're capable of. I don't doubt you.