His overall swelling has gone down, and he is more awake. Over the weekend, he's had the probes going into his heart and his breathing tube removed. He is still on the pace maker, as the attempts to take him off of it led to his heart stopping momentarily. I try not to be nervous about the possibility of him having to be on a permanent pace maker. But if that's the worst thing that comes out of this, I'll be glad. Today was the first day he was given milk again, but his bowels aren't moving well enough to handle it. The doctors say Quinn will have to ween off of the narcotics a bit more and try again later to eat. Without the pain meds, he has many bouts of angry crying day and night. I still like hearing him cry. I know it's good for exercising his lungs and clearing out his airway.
I know he has plenty more pain to suffer through, and I wish there was more I could do than just watch him. But I don't lose sight of the fact that he is getting better with each day. I don't need any reminder of how lucky he is to be alive. He's well on his way to being another happy success story for today's doctors.